A parent of a child with cerebral palsy has called on medical professionals to conduct more research on cerebral palsy to avoid unnecessary medication and mistakes
Ms Emelia Gynkel Bawa who made the call
said her son vomited a blood-like substance for over nine years and doctors
couldn’t link it to a specific cause till the child eventually passed on.
She said: “ Doctors treated my son for peptic ulcer for years, but during his last moments on earth they
said it was probably not peptic ulcer but rather hiatus hernia, yet he was put
on medication for years for peptic ulcer.”
Ms Gynkel Bawa made the call on the
Inclusive Family Alliance platform after several parents reached out to her describing
similar conditions that their children with cerebral palsy were going through
with no definite solution from the health care providers.
The Inclusive Family Alliance is a
community platform for parents of children with disabilities mostly parents of
children with cerebral palsy who engage in peer counselling, peer support and
also refers families to existing support programmes or systems.
Ms Bawa said “my son endured the ordeal of vomiting
a blood-like substance and passing dark stools for years, he was on medication
but it couldn’t stop it, I strongly believe that there is the need for more
research on such issues to help parents understand the condition and know what
to do.
Other parents who shared similar
experiences said, their children have been vomiting the blood like substance
and have run several laboratory test but nothing concrete is said about the
cause of that.
The parents urged government to pay extra
attention to cerebral palsy as a condition and support families of children
with cerebral palsy in Ghana by putting in place the necessary support systems.
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